The outcome of our latest appointment. 3

Last week, we had our second private consultation with Dr Adam Fox. We first met him almost a year ago, when after years of poor treatment from local GPs and hospitals, I decided we would have to pay for it ourselves, if we were to get Zac in front of a specialist. The first appointment was a success and gave us a greater understanding of what was causing Zac’s various symptoms, but because tests were need Dr Fox wrote to our local hospital and GP and suggested they are managed through the NHS – to save us money, and because they should have accepted him as a patient and run these tests in the first place.
After several NHS appointments and several rounds of blood tests we were pleased that all of Zac tested negative to all of the allergens we had identified as troublesome and this looked like it was confirming Dr Fox’s hunch that Zac has non-IgE mediated allergies, but nonetheless should keep to his restricted diet and take anti-histamine twice daily, with a view to looking at some challenges in the months and years ahead.
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A bit more on Histamine Intolerance – the lesser known condition 7

Allergic reactions – but negative blood test results. How is that possible? I know I am not the only parent/person faced with this puzzle. I belong to a few ‘allergy groups’ on Facebook and have got to know a few other bloggers and sufferers over the last 12 months have discovered that there are many of us in the same boat.

We all feel we are going crazy, because we have such real reactions and yet it is so difficult to get doctors to believe there is anything wrong. Then you have to beg and plead for allergy tests. If/when they finally relent and you go through all that stress and receive negative blood test results – should you stop or continue to strive for a diagnosis?

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Skin infections – our latest challenge 5

Last year Zac had a horrible spot on his elbow that turned into a rash with an erupting abscess at the epicentre. The first GP who saw it said it was nothing. A few days later when it was oozing, another GP decided it did need anti-biotics and the pus needed to be squeezed out. She did it while I held him and it is a memory that still haunts me. The doctor went pale as she did it and both of us went temporarily deaf from the ear piercing screams of my brave little hero.

Ever since then we have always been very vigilant at keeping an eye on any ‘weird’ skin stuff. He did have one other very nasty rash that was diagnosed as eczema but until last week, his skin has been pretty good. But then a week or two ago Zac had a few ‘bad nights’. Lots of fidgeting and getting up in the night, itchy, very sweaty and his tummy seemed very bloated. These were all problems that were part of every day life until we started him on antihistamine twice a day. Because he has been so well I foolishly started to think perhaps he was growing out of his condition and so I became less vigilant with the medicine. I don’t like pumping him full of drugs every day so perhaps was subconsciously challenging him. BIG mistake.

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