What a difference a day (or 3) makes. Over the last couple of weeks our story has been picked up by ITV News, The Evening Standard, Five News, The Sunday Mirror and BBC Look East. I have pushed hard to ensure that my message gets across – Zac has been very poorly treated by the NHS, but obviously Ms Dorries was the main focus of these pieces. I was not intending to crucify our MP, but when she went in the jungle, I saw my opportunity to get the attention of the press and went for it. I am sure Ms Dorries, and any other driven and devoted mother would have done the same.
So after our successful private appointment confirmed by suspicions that Zac had allergies and should have been treated, I tweeted again and attracted a bit more attention. This week I have heard from the local newspapers, The Times and last but not least Ms Dorries office. I have had some very nice emails (considering some of my quotes) – and they have assured me that they have contacted the Luton and Dunstable Hospital about the rejected appointments and would have some answers for me soon. I was pleased with the progress, but sorry to have had to do this. Some of my less favourable quotes would have appeared in print after they called me with updates, so I could understand if they feel I have been overly critical – but I have been left with no choice. I am still determined to get Zac the treatment he needs and I don’t think I should pay for it.
I also think I am justified in bringing to my MP’s attention, that there are some serious issues at the Luton and Dunstable Hospital. They should never have rejected his appointment – without at least explaining why. It automatically put us to the bottom of the pile, despite the fact the referral had been made on the back of an undeniable allergic reaction – the instant chronic itching episode. NICE guidelines have been written and issued to doctors and specialists which make it clear that this kind of reaction is ‘allergic’ and not intolerant and is not to be ignored.
Since the first appointment rejection, I went back ‘into the system’ with a request to see a different specialist, in the hope that this one might see us. The rejection of that appointment came through (from The Appointments Line) on 5th November. I called my surgery immediately and the were ‘unable to see’ on their system what had happened. The very next day I received a letter from The Outpatients Department confirming our appointment for 2nd January 2013. I was still not happy. First, I didn’t feel confident that the appointment truly existed as clearly another system had automatically fired out a letter saying that it was cancelled. No-one I spoke to seemed to know if it was ‘on or off’. No matter what, it was not due until January and my child needed to be seen asap, so needless to say I decided to press on with our private consultation and take him to that on 13th November.